Showing posts with label special needs. Show all posts
Showing posts with label special needs. Show all posts

Wednesday, 3 October 2018

Positive Labelling...

Yet again, I begin a post by apologising for taking so long to write anything.

It's so easy to blame everyone else - but the truth is that things have been going so well recently that my fear is that I may appear to be gloating and, even worse, I may jinx myself and upset the equilibrium.

But here goes!

I'm going to focus today's post on our youngest son.

TJ has had such a difficult few months. Firstly he had his diagnosis for Foetal Alcohol Syndrome, which hit him really hard and this was followed by a full post adoption assessment (something which is available to all adopted children, but is rarely offered as its expensive - so adoptive parents, if you haven't been offered one, just ask, the authority can use the Adoption Support Fund to pay for it, so it shouldn't cost them anything.) Anyway, TJ had a full assessment which revealed the depth of his ASD (Autistic Spectrum Disorder) - obviously every child is unique and TJ's main area of concern was his ability to read social cues etc. We had always put it down to his unique way of looking at the world and potential Attachment Disorder - yes, he has that one as well. By the end of the assessment he had so many letters attributed to his many diagnosis that he started to look like a Countdown Conundrum. At first I was mortified. Yes, we had always expected these things, but to have someone sit down and explain everything to you is a very different matter. I then went away and read everything they recommended, another reason I haven't had a lot of time to write - I've been reading lots. And, the more I read, the more I kick myself, thinking how did we miss this?

Well, we missed it because we weren't looking for it or we didn't want to see it or maybe we knew but were in denial? So many possibilities.  Maybe we were simply avoiding the dreaded labels.

But the one thing labelling TJ's foibles has done, has been to open so many doors to him. Particularly with education.

He was accepted into a specialist school and, whilst to begin with we were concerned as to how he would fit in - it hasn't bothered him a bit. He loves it. He has even talked about his learning difficulties and how the school are helping him.

Yes, its very like a primary school in its outlook, but he is so less stressed. I haven't had a single day of school refusal - yet (touch wood). He is up every morning, with his uniform on and ready to go. He loves maths, science and forestry... I didn't even know forestry was a thing! He has made friends and has even been invited to a party. I can honestly say that he is a different little boy.

He still swears at me on a regular basis (I blame the FAS) and he still has his stubborn moments - like refusing to leave the house for my birthday dinner as he had a TV programme to watch and was already in his pyjamas. But these are little things that pale into comparison with what we were dealing with before and to be honest, I can sit back and laugh at them.

I can breathe again.

The house is so less stressful, Papa is calmer, I'm calmer and this boys actually seem to get on (most of the time)...

Tomorrow, I'll tell you all about KC.

Two positive posts in two days - how will you cope! :>

Friday, 22 March 2013

Holding out for a Hero!

This week was parents evening at school. And, as expected, I ended up being there for over an hour. I always book in the last few slots and ensure that I am at the end. It's not that I am overly concerned but I am fully aware that my kids will take up quite a bit of 'discussion' time and I would hate have to follow me. I know this from experience, in our first parents evening I took quite an early slot and ended up with a group of 'politely' angry parents sitting behind me, waiting their turn and discussing (quite loudly) how long I had been there. I now get there the day the signing up sheets go on the board and check that I am at the very end!

There was a lot of discussion this week about Special Needs programmes, for both kids now though. We always knew that TJ has a learning difficulty through his special needs and that Lea was a bit delayed, due to her experiences in early life. However, recently, Lea has been slipping further and further behind and we have had a series of assessments - which have resulted in a diagnosis of a severe form of dyslexia which effects her memory, number and word recognition. But the school were great in showing me where to get help and in putting in one to one tuition for her from next term. Lea was so pleased when we sat her down and explained what it all meant. She simply looked at me and Papa and said, 'Well, at least I know why I am stupid now." My heart went out to her and we sat with her to explain that she wasn't stupid but that she had a problem that we could now help her with. In many ways I am so relieved to know that it is a 'condition', to be honest, we were beginning to worry. After all, no matter what he has been through in her short life, we still have to help her get on with the future and she has to learn how to cope. I'm sure all parents feel the same...

On a lighter note, whilst I was looking through TJ's work I came cross a page in his literacy work which  had focussed on the heroes and heroines in our lives. Last year Lea had completed the same work and had noted that her hero was Michael Jackson, to which the teacher added the comment, 'an interesting choice.' I don't know where his love of MJ comes from but I am introducing her to the incredible "Off the Wall' album before she gets caught up in the Thriller video (which I think has a lot to do with her love of the star.) However, I digress, TJ had this year chosen his hero - and it was me! He had written, 'My Daddy is my hero because he stops me from falling down and hurting myself." Then he had added, 'And Papa is too." (I chose not to see that last bit - obviously it was all about me!).

But it shows that TJ does have deep feelings for us - he is a very withdrawn child who is not open to expression, he hates cuddles and kissing - such a boy! But it also stems from his special needs. However, for him to publicly recognise us is a huge step - and following on from his Mother's Day drawing of us it does give us hope that we are doing the right things....