Showing posts with label ASD. Show all posts
Showing posts with label ASD. Show all posts

Friday, 8 February 2019

Urinetown...

Sometimes adoption throws up the strangest of challenges designed to push all of those 'parenting' buttons.

We've had a busy couple of weeks. TJ's 'emergency' CAMHS (Children and Adolescent Mental Health Services) finally came through - it was originally referred by the GP last June when TJ's anxiety became so heightened that he threatened suicide and refused to go to school (see School Refusal post) and the GP signed him off school whilst we awaited his EHC plan to be completed, thus allowing him to attend a specialist school. During that wait TJ gained his plan and obtained a place at an ASD specialist school - I wont say he loves it there but he had a really good parent's evening where he was seen to be a popular child who is meeting all of his expected educational milestones - they even have him on a GCSE pathway - something his previous schools had all discounted.

Anyway, the CAMHS meeting finally happened, where we were told we were doing al the right things and that the change in school had obviously had a major impact on TJ's mental health and that he was settled now and could be discharged from CAMHS - although they would offer a recommendation of a referral to a sleep clinic as TJ told them he still has trouble sleeping.

Thank goodness we weren't relying on that appointment - for us to have waited 8 months, as an emergency, reflects that state of mental health care at the moment - its not the fault of the professionals - they simply don't have the resources. I dread to think how long we would have to have waited if if wasn't an 'emergency'. Sigh...

So we thought TJ had finally turned a corner and then.... I walked into his room... and the stench hit me. It smelt not unlike a gents toilet and not one of those fancy new toilets with lovely air fresheners and background music playing. Think more of a gents toilet in a railway station circa 1985 - horrendous.

I spent the next hour on my knees sniffing various parts of the room. He hadn't wet the bed, he hadn't been seeing into a box or the bin (these are usual occurrences). No, he had wee'd directly into the corner of his room - all over a pile of teddies and bags. It was everywhere. For a thirteen year old he can certainly hold a lot of urine.

So he was duly called in for a 'chat'. After a long period of listening to a variety of stories involving each of the pets coming into his room and wee'ing on his toys, alongside his brother doing it to get him into trouble, or even a stranger breaking in during the night. Eventually he admitted he had done it, but he didn't know why. I reassured him that he wasn't in trouble -I just wanted to help him an to make sure it didn't happen again. Maybe he had been in a deep sleep and thought he was in the bathroom (which is next to his bedroom), or he was caught short - but no, he was quite happy to tell me he got up and wee'd on his stuff - it was bizarre. So he helped me clean it all up. I say clean - we can clean up the mess but the smell remains... its horrendous. But a quick google and trip to the supermarket has enabled me to find a new carpet cleaner and urine neutraliser. The mess is easier to clean up. the mental issues less so.

A chat with my online support group led me to the conclusion that he is anxious and is possible going through a period of regression. As a child in his birth family he was locked in a room for hours on end with no food, toileting - anything. When he first came to us he used to peel wallpaper off during the night so he had something to eat. Food is a huge issue for him. He has to know that fridge is always stocked. The smell of urine was probably a comfort to him - reminding him of being a baby. in the same way we only have to smell Johnson's baby powder and we feel warm and cuddly - for him urine has the same effect.

I don't know - the damage that was done early on in life is so difficult to both understand and impossible to correct - for both him and us. But I guess that's adoption - trying to teach the young people how to deal with their past trauma. how to recognise that this is a throwback and isn't going to happen again. And just when you think you've sorted it all out - it rears it's ugly head again.

Then, to cap it all, I had a call from social services. Birth mum has decided, after years of not showing the slightest interest, that she would like to get in contact with 'her boys' again. i'm not going to deny her that - maybe she's changed, maybe she's remorseful, regretful, whatever. I'm all about forgiveness. But it's easier for me to forgive, I didn't suffer because of her neglect. I don't have Foetal alcohol syndrome because she drank so heavily during her pregnancy. I didn't sit crying in my room unattended and having to eat wallpaper and sit in my wet nappies for hours on end.

I always said I'll support both boys if they want to meet her eventually. But I'll also understand their decision if they decide not to.

Not that it's my choice to make...

But not until they are ready.



Wednesday, 3 October 2018

Positive Labelling...

Yet again, I begin a post by apologising for taking so long to write anything.

It's so easy to blame everyone else - but the truth is that things have been going so well recently that my fear is that I may appear to be gloating and, even worse, I may jinx myself and upset the equilibrium.

But here goes!

I'm going to focus today's post on our youngest son.

TJ has had such a difficult few months. Firstly he had his diagnosis for Foetal Alcohol Syndrome, which hit him really hard and this was followed by a full post adoption assessment (something which is available to all adopted children, but is rarely offered as its expensive - so adoptive parents, if you haven't been offered one, just ask, the authority can use the Adoption Support Fund to pay for it, so it shouldn't cost them anything.) Anyway, TJ had a full assessment which revealed the depth of his ASD (Autistic Spectrum Disorder) - obviously every child is unique and TJ's main area of concern was his ability to read social cues etc. We had always put it down to his unique way of looking at the world and potential Attachment Disorder - yes, he has that one as well. By the end of the assessment he had so many letters attributed to his many diagnosis that he started to look like a Countdown Conundrum. At first I was mortified. Yes, we had always expected these things, but to have someone sit down and explain everything to you is a very different matter. I then went away and read everything they recommended, another reason I haven't had a lot of time to write - I've been reading lots. And, the more I read, the more I kick myself, thinking how did we miss this?

Well, we missed it because we weren't looking for it or we didn't want to see it or maybe we knew but were in denial? So many possibilities.  Maybe we were simply avoiding the dreaded labels.

But the one thing labelling TJ's foibles has done, has been to open so many doors to him. Particularly with education.

He was accepted into a specialist school and, whilst to begin with we were concerned as to how he would fit in - it hasn't bothered him a bit. He loves it. He has even talked about his learning difficulties and how the school are helping him.

Yes, its very like a primary school in its outlook, but he is so less stressed. I haven't had a single day of school refusal - yet (touch wood). He is up every morning, with his uniform on and ready to go. He loves maths, science and forestry... I didn't even know forestry was a thing! He has made friends and has even been invited to a party. I can honestly say that he is a different little boy.

He still swears at me on a regular basis (I blame the FAS) and he still has his stubborn moments - like refusing to leave the house for my birthday dinner as he had a TV programme to watch and was already in his pyjamas. But these are little things that pale into comparison with what we were dealing with before and to be honest, I can sit back and laugh at them.

I can breathe again.

The house is so less stressful, Papa is calmer, I'm calmer and this boys actually seem to get on (most of the time)...

Tomorrow, I'll tell you all about KC.

Two positive posts in two days - how will you cope! :>